This post may be short. we'll see which runs out first. My patience or this shitty internet connection. Both are at dangerously low levels.
Matthew is doing as well as can be expected. He had an MRI this morning and this evening had a bone marrow also had a port installed in his head. The bandage used matches his slippers. The purpose of the bad ass slippers and bandage is to basicly instill a sense of fear into the other sick kids through intimidation and otherwise unruliness. In all seriousness, he looks hilarious in them and he loves them and they are kind of kick ass looking.
I am not going to get into specifics here other than to say that there is very little history to go on given what is happening to Matthew. The odds of recovery are low. He needs a stem cell transplant. That is an absolute 100% certainty. But to get there, he needs to first get into remission. We are running out of drugs to try to accomplish that. We have a few more weapons to try and we're not giving up. Nicole is amazing and the way she advocates for Matthew is unreal...even for a mom. Claire does not know what is happening at this point. She is going to be crushed. She loves her little brudder so much and recently revealed to Nicole that she wanted to marry Matthew.
I waited 6 seconds for the photos to upload but they didn't so I gave up. I will post them tomorrow.
updated 4:25 am....
Matthew's Ommaya reservoir
Matthew's slippers
In the PICU
Posts
16 comments:
I pray that god will give you guys a miracle.
I'm praying with all my might!
I am so sorry the cancer came back. Tears are running down my face. Miracles do happen though. I'm praying you get your miracle soon. God bless Matthew, you, Claire, and my sweet strong friend Nicole. Keep up the fight. What amazing parents you are. I'm in awe everyday watching you guys.
Ellen
You are all in my prayers!
My prayers are with you all!
Praying for you guys. Matthew is a very strong brave little boy!
Our families have not met yet I have followed your story through the Bottarelli's blog. My heart is breaking for you all! I can't begin to imagine!
I want you to know you are in my daily prayers! I believe in the power of prayer and miracles! Sending them both your way!!!
I am so sorry to hear this news. I am praying for Matthew with every ounce of my being. I believe in miracles and if anyone is due for one it is Matthew. Kellie-Jo
Dear Gene and Nicole,
Michael and I are reading this with so much sadness. We are renewing our prayers for him and your family. Please tell us at any time if there is anything at all we can do. We can be there for you at any time.
We love you all,
Peg and Michael
Just wanted to let you guys know that I'm thinking of you and praying for Matthew. I really can not even imagine what you are going through. I know it is extremely scary... but it is important not to lose hope! Matthew is a strong little fighter... and this battle is not over yet! If you ever need anything (especially a shoulder to cry on), you can always come to 4west- we are all here for you and love your family very much!! I hope you were able to move back "home" to 4 west tonight- we can't let those PICU nurses hog you!
We don't know what to say. We keep saying prayers throughout the day. Hugs and Kisses to Matthew. He is one strong little guy.
Thinking about you guys and praying for you.
Gene - We are constantly thinking of the four of you and praying. That is all I can say besides we are here for you for whatever you guys may need.
Don & Steph
We cannot tell you how many prayers go out to your whole family. You are all amazing and you just keep up the fight. God bless you all and know our thoughts are with you.
Love,
The Roberts Family
Gene & Nicole, I cannot imagine the emotional roller coaster you two are on. My heart is breaking, and I'm crying for you. I will be fervently praying for a miracle!
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