best. christmas. ever.

We set out to make this the best christmas ever (because if you don't, then what the hell's the point?), and we succeeded. The kids had a blast and we did also. Matthew has been feeling ok. He is starting to experience some more serious symptom of graft vs host disease. Mostly leg rashes but also some considerable nausea. He felt pretty good for most of the day but also had some stretches where he seemed very tired and weak.

The pic above pretty much says it all.

Claire did not want to go downstairs without Matthew.  She waited for him in his bed while we unhooked his IV fluids and then they went down together.  Awesome big sister.

Present hangover

 harley davidson santa. 

(claire is not pictured because, as she said, "I like Christmas.  I'm just not that into Santa)

We missed the special needs days for the Naperville Santa so learned of this dude during our normal stalking of harley davidsons.  worked out well as there were very few people there.  Still very limited as far as places we can go.