Wednesday, June 16, 2010


Nicole and I want to thank everyone for the thoughts/prayers and hopeful wishes.

Matthew is doing better today than he was yesterday.  He is still not talking and moving seems to be very painful for him but he stays awake for up to an hour at a time and seems to enjoy the Phineas and Ferb episodes on Disney.  Actually it is more me who is enjoying the P and F and he just tolerates my giggling.  He also enjoys me kissing his face although he will not smile or laugh like he once would.  He did eat about a dozen donut holes (glazed) and consumed them as if there was some sort of donut hole bugler on the loose.  He barely moves until the donut is within reach and then he grabs it and shoves the entire thing into his mouth and commences the chewing process.  All that's left afterward are remnants of glaze on his shirtless chest that were lucky enough to escape the carnage.

Claire came up to the hospital today and got to visit with Matthew which she loved.  She misses him so much and was so excited to spend time with him.  I know seeing him must have been tough for her.  I have a pic but I am lacking the motivation to get off this chair. 

I cannot describe the feeling that Nicole and I are feeling right now.  Waiting 2 weeks to get some indication whether this is going to work is gut wrenching.  We are feeling like we are crawling out of our skin and constantly want to vomit.  The staff here at CMH has become like family to us and they care for Matthew as if he was their own.   I will try to get some more pics tomorrow.  Here is one from the Bott's blog.

Here is another one of my favorites from a while ago.  Matthew's smile is priceless.


Anonymous said...

Gene, Cupcake Mike here. Your family is in our thoughts constantly. The donut hole story is just terrific. It sounds like he's trying out for an upcoming role as a young hamburgler. I hope you're all able to keep your spirits high in these next two weeks - none of us can empathize with you, but we all understand what you're going through. Hang in there my friend.

Mary Kincaid said...

Gene and Nicole, there are not enough words to describe how sorry I am. My thoughts and prayers are with you guys, Matthew and Claire.

littlebug-peg said...

Dear Gene and Nicole,

Our friends and family continue to be updated and present in the prayer circle. Thank you for your blog posts; it must be hard to write during these tough times.

We miss and love you,
Peg and Michael

Garbis Grapevine said...

Still hoping, praying, and thinking about you guys during this tough time.


Traci said...

We are praying endlessly for Matthew and your whole family. Know that there are so many people (many that do not even know you!) who are praying for Matthew everyday.
Hugs to all of you!
Traci and Jason

Anonymous said...

Gene & Nicole: Your courage under these most trying circumstances is inspiring. We can never know how it must have felt when you were told the recent news. After seeing you all together at Dana's graduation party a week or so ago, with Matthew so active and seemingly at ease with his illness, like everyone else there, I assumed the worse was over. The Michigan Damato's are keeping you and little Matthew at the top of our prayer list until that miracle you need arrives. God Bless. Joe, Sue, Nick & Matt.

Ellen said...

Just wanted to let you know I have just about everyone I know, including my self, praying for you guys. I pray that God comforts you during this unbearable time. May he carry you and give you strenghth. What a lucky boy Matthew is to have such dedicated loving parents. I know he feels you love right now and is smiling inside even though he can't smile as much on the outside. I miss you guys.

Ellen said...

I also wanted to tell you guys a good quote I told Nicole's mom. You never know how STRONG you ARE until being strong is the only choice you have. Hang in there you guys.