This post may be short. we'll see which runs out first. My patience or this shitty internet connection. Both are at dangerously low levels.
Matthew is doing as well as can be expected. He had an MRI this morning and this evening had a bone marrow also had a port installed in his head. The bandage used matches his slippers. The purpose of the bad ass slippers and bandage is to basicly instill a sense of fear into the other sick kids through intimidation and otherwise unruliness. In all seriousness, he looks hilarious in them and he loves them and they are kind of kick ass looking.
I am not going to get into specifics here other than to say that there is very little history to go on given what is happening to Matthew. The odds of recovery are low. He needs a stem cell transplant. That is an absolute 100% certainty. But to get there, he needs to first get into remission. We are running out of drugs to try to accomplish that. We have a few more weapons to try and we're not giving up. Nicole is amazing and the way she advocates for Matthew is unreal...even for a mom. Claire does not know what is happening at this point. She is going to be crushed. She loves her little brudder so much and recently revealed to Nicole that she wanted to marry Matthew.
I waited 6 seconds for the photos to upload but they didn't so I gave up. I will post them tomorrow.
An aggressive (fast-growing) disease in which too many myeloblasts (immature white blood cells that are not lymphoblasts) are found in the bone marrow and blood. Also called acute myeloblastic leukemia, acute myelogenous leukemia, acute myeloid leukemia, acute nonlymphocytic leukemia, and ANLL.