Saturday, December 05, 2009

packy update

The first round of chemo is done and we are on to the second dosage.  Matthew (he is also referred to by many other names such as but not limited to, "packy", "Mdogg", "mj",  "little dude")  is hanging in there with incredible fortitude.  


He did get sick last night and threw up most of his cottage cheese.  Since then he has been given medicine for his nausea and he kept down today's helping of cottage cheese.  He loves cottage cheese.  He woke up this morning in quite the cranky mood.  When the regular doses of Tylenol and Ibuprofen were not doing the trick, he was given a small dose of morphine and that agreed with him very well.  


Aside from the cottage cheese and occasional fistful of teddy grahams, he is not eating too much.  We received a very nice gift of cupcakes and, with the precision of a talented surgeon, he removed and discarded the cake part of the cupcake leaving only frosting for him to smear on his face.  


He went for a walk around his floor of the hospital and did great. After being in a bed for the past three days, he must have felt great to get out and about.  He felt comfortable enough to make the trip in only his diaper and little yellow booties.  He also made sure to stop by the nurses station so they all could noticed him.  He has so many wires hooked up to him and they are driving him nuts.  Currently there are 7 wires or tubes connected to him in some fashion.  He love to play with his trucks and tractors which distracts him for short periods,  


The support continues to be incredible and Nicole and I are touched deeply by the thoughts and well wishes.  Keep praying and hoping.  

7 comments:

Anonymous said...

We just wanted to let you know that we are thinking about all of you and you are all in our thoughts and prayers. Please let us know if there is anything we can do. God bless you all.

Royd, Jeannie, Leah, Hannah and John Roberts

Anonymous said...

We are praying, praying, praying. The blog idea is tremendous.

Love Aunt Barb

Grandma Fran said...

People from St. Thomas, St Raphael's.and st Louis (Pittsford) are praying for all of you. Fr. Joel offered his mass for you this morning. Many of our friends want to bring over dinners and help wherever they can. We have HOPE with this outpouring of love.

lgarbis said...

Thinking about you guys!!!!! Cottage cheese must not look very good coming up, then again I don't think it looks very good going down. At least he enjoyed the frosting and walking around!!!!!!!

Love and prayers,

Lisa

Anonymous said...

Gene, Nicole, Matthew - We are thinking of you guys! Hang in there and play with those trucks!

Don, Steph & Quinn

Allyson Peck said...

We are paraying for you and your family. In case you need a place to catch some sleep while you are at the hospital, the Ronald McDonald House is a good option. Here is one that I think is near the hospital. If you are not familiar, they are places for families to eat and sleep while their children are staying at the hospital. They are usually $10 per night.

RMH near Children's Memorial Hospital
622 West Deming Place
Chicago, IL 60614
773.348.5322
2 blocks from Children's Memorial Hospital

House Manager: Anne Czarnecki

Orie said...

Our whole family is thinking of you everyday and are in our thoughts and prayers. Please let me know if there is ANYTHING we can do to help.
Love,
Dave,Orie,Zack and Kyle