Friday, December 04, 2009

Worst fears confirmed

Our worst fears were realized this afternoon when we received the confirmed diagnosis of AML (acute myeloid leukemia)  for Matthew.  I think Nicole and I had prepared ourselves for this but were holding out hope that maybe there was something in the last test that would point somewhere else.   Matthew did great when they put in his PIC line and even during his spinal tap.  The sedatives did their magic but he still managed to make some cute faces at the nurses.

Matthew will be part of a study that is aimed at developing a new drug for treating leukemia.  This drug is designed to work specifically on the chromosome (11) that is affecting Mdogg.  

So what's next?  Beginning tonight, Matthew will have 10 days of intense chemotherapy.  When that is complete, he will be able to go home for a month or so while his blood counts come back up.  At this time, he will return to Children's Memorial (cmh) and have 8 more days of chemo.  Assuming no problems, he will return home for another month and then back to CMH for 5 more days of chemo.  At this point, there are a couple of different things that could happen, including a likely bone marrow transplant.  

CMH has been great.  We feel very fortunate that we are being cared for by the doctors and nurses there.  Matthew, although tired and rightfully cranky, is in pretty good spirits and enjoys being naked all the time.  He also learned a new word...'doctor'  and likes playing with the mechanical bed.

Thank you for all of the thoughts/prayers/and well wishes.  


Katherine said...

Hey Nicole and Gene-
We are thinking of you all the time. That little Matthew is a fiesty one and will pull through this! We will help you in any way that we can. I hope to talk to you soon.
Much love-

lgarbis said...

Hi guys,

My thoughts and prayers are coming your way and to Mdogg! Sending you positive energy and strength as you go through this crap.


Anonymous said...

Our thoughts and prayers r w/you. We have a friend who's 17 yr.son just completed treatment and remission of AML at St.Jude. He finish HS and is now in college. Seems like they have proven method also. If there's anything we can do please let us you, Aunt Anne

Anonymous said...

Nicole & Gene,

Our prayers are with you and your family. If there is anything you need, don't hesitate to ask. As you know, we are just down the street from Jennifer & Adam.

Linda & John Klein (Elise & Bruce's Nana & Pop)

Anonymous said...

We are praying hard for you all! Please let me know if we can help in any way!!!
Love, Jennifer

Anonymous said...

I just need a little explanation, would anyone care to elaborate on the last comment?
I don't think it's up to anyone to judge what people's posts should be about. Why not allow everyone to just say what they want (in designated threads, ofcourse)?
Hey, can I get in touch with you via email? You seem to be experienced in this topic.
How do people blog on other people's blogs? Can I guest post on your site, I have lots of interesting articles.

The light at the end of the tunnel is the light of an oncoming train.

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