The special things being done for Matthew are almost too numerous to mention. From cupcakes to trucks, tractors and books given to him to the incredible love shown to Claire as well, it is difficult to describe how much this means to Nicole and I. Recently, our good friends Jennifer and Katherine ran in the Rudolph Ramble 8k, a race to benefit Children's Memorial Hospital in Chicago. Aside from nearly winning the race, they had t-shirts printed with "Team Matthew" and a picture of the little man with his signature mohawk and cute smile. Jennifer and Katherine wore the shirts during the race and also had several others made for Nicole, Claire, and I, and also for the members of their families. Matthew has his own 'Captain' shirt.
Nicole and I received some training on how to care for Matthew's PICC line. Nicole is way better at this than me and the nurse was not amused at my comment that I would be training Claire on how to flush his line. He needs his line flushed daily to prevent blocking from occuring. Last night Matthew received platelettes and had a little bit of an allergic reaction to them. He threw up a little bit in the middle of the night and woke up with what looked like little black eyes and a rash on his legs. We are still hoping to go home in the next few days, even if it is only for a little while.
An aggressive (fast-growing) disease in which too many myeloblasts (immature white blood cells that are not lymphoblasts) are found in the bone marrow and blood. Also called acute myeloblastic leukemia, acute myelogenous leukemia, acute myeloid leukemia, acute nonlymphocytic leukemia, and ANLL.